Ehlers-Danlos Syndrome

Omaha, NE –The Ehlers-Danlos Syndromes are a group of genetic collagen disorders that affect the connective tissues throughout the body.  Many people with EDS appear to be normal and healthy, but often struggle with body-wide dysfunction as connective tissue is used to support the skin, bones, blood vessels, arteries, gastrointestinal tract, and internal organs.  Because no two people with Ehlers-Danlos Syndrome are affected by the condition in the exact same way, it is very hard to diagnose, which leads to many people not being diagnosed for 20 or more years.  The symptoms can range from mildly loose and hypermobile joints to life-threatening complications.

Wendy Hamilton is the Co-Leader of the Omaha EDS support group and she joins Mike Hogan "Live & Local" to talk about living with the condition, how the support group can help everyone cope, and the "hacks" that can be used. 

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The Woodmen Tower will be lit up in black and white "zebra" stripes tonight (Monday) for Ehlers-Danlos Syndrome (EDS) Awareness Month, which takes place in May.